Wednesday, May 28, 2014

Not getting easier

My mind is a million miles an hour this morning. Hubby has been having what we think are reactions to his injections. One of the main ones that shared solutions kept asking about is almost an anxiety attack feeling. His first one was a few weeks ago when we were shopping. He flushes and feels light headed, he feels sick and his chest gets tight like he's having an anxiety attack. They always said if it happens he is suppose to sit down and breathe through it. Well, it's not so easy we are learning. They are only suppose to last up to 10 minutes and he has had a few that are almost 45 minutes. Combined with all of the other symptoms, I am not liking this. There is nothing I can do, all I can do is watch and be there. Last night was by far the worst experience so far. I say so far because I am learning that I don't know what to expect. I have to roll with things and I hate it. 
I am thankful he's home this week, because last night he gave himself an injection, and within a minute or two he sat back in the chair and started saying he couldn't breathe. He flushed and got hot, his chest got really tight and then the pain started. Before I knew it he was almost screaming and was in excruciating pain. His back was spasming. I tried to help him forward but he dropped to his knees and was gripping the chair it hurt so bad. It felt like forever but it went on for about 5 minutes before he was able to get a handle on it. Once the spasms stopped he was left feeling beyond exhausted, had a headache and felt pretty awful. The only positive was that it wiped him out so bad that he fell asleep right away and was actually able to sleep through the night which hasn't happened in a long time. 
So, where does this leave us? I have no idea. Is this a medicine reaction? I don't know. Does he need to get off the Copaxone injections? Potentially but then what? I hate this. I hate it I hate it I hate it! The unknown is what makes me crazy. I can't stand seeing him in pain. It completely breaks my heart because there is nothing I can do to take the pain away. 
Hubby is going to call shared solutions and see what they say. Maybe this is injection reaction and maybe this is just the MS not being managed as of yet. Like I said in the last post, we head to the neurologist on the 2nd and hopefully we can try for some more answers. Until then I hope and pray that the spasms don't continue. 
Do you ever feel like you are holding your breath? I sure do right now

No comments:

Post a Comment