Symptoms and management:
It sounds crazy but I find myself watching Hubby and waiting. I wait for another symptom, another sign something is coming through or even a sign that he's feeling better. I think it makes me feel like I am actually doing something instead of waiting for the next shoe to drop. Because of it I notice the little things which can be good or bad. As of right now, he's battling the exhaustion, lack of memory and word replacement. The memory thing is consistent actually. He just can't remember something's. What do I mean by word replacement? It's within his speech. He will be talking and instead of saying the word he means to, another word comes out. It is not all the time, and the word is generally in the same catagory. For example, we were talking about the house one day, and he was trying to say driveway but said garage. 99% of the time he is able to catch it and corrects it which is great but he gets pretty frustrated sometimes. The part that seems to bother him the most is the memory thing. He gets really frustrated when someone comments about him not being able to remember. There have been some people he will snap at and point out that last time he checked he has MS and can't do anything about it, but there have been a few that when they say something, I can see on his face that it's like a dagger to the heart but he lets it go. Those are the moments that really kill me. Watching the pain on his face and knowing how bad it hurts him makes me want to snap at people for him. I don't. I let it go and don't make a scene because I know there is a reason he didn't say anything.
We head to the Neurologist on Mondsy June 2nd for another appointment. If you have been keeping up on the blog, you will remember that he had an MRI when he was going through the last attack. Since then, the neurologist has requested another MRI because when a new spot or spots come through, they can't see it on the MRI until it has scarred over. This means that they could only see the spots from the attack in August and because he was having another one, now they can't see what new spots that were created during the December/January attack without going through another round in the loud tin can they call an MRI machine. Well, insurance being insurance will not grant another MRI. They are stating that the one he just had was more than enough. I tried to fight it and so did the neurologist but they aren't budging for right now. Either way, we wait until they will approve one and in the mean time we talk about his symptoms and his treatment. The injections are still leaving the "marbles" under his skin but not as long as they were originally. By the time he gets around to the same spot a week later the previous spot is almost gone. Hubby still hates the injections and has taken a look at other options but we will talk to the neurologist. He said if he needs to stay with these and inject himself everyday to not progress that's what he will do. Not that he doesn't hate it every time but what else do you do?
I will post again if anything changes but as of right now this is where we are at. I am hoping that the exhaustion lets up a bit so he can get back to running again but he has a really long stretch ahead of him over the next 2 weeks and I have a feeling it's not going to make things any better. Who would have ever thought that just before his 33rd birthday, the amazing man I call my husband would have been diagnosed with MS.........it's crazy how life works sometimes.
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