Monday, August 26, 2013

Nothing prepares you.......

Nothing prepares you is right! Nothing prepares you to start weeks of doctors and appointments and then WHAM!!!!!!! Your husband has Multiple Sclerosis.  Yup, you heard me.  My 32 year old husband was just diagnosed with MS.  It is interesting that since he is the one with the symptoms, that I am noticing as I go through the stages of coping myself.  Quick synopsis as to where we are at with things because I feel like the story of everything could be recorded to make it easier.
A few weeks ago my hubby tells me that his eye was funny when he was running so I told him to get his eyes checked.  (Thursday) Appt #1 was the Optometrist who was great but said she didnt have the equipment to fully test him but that she thought it was Optic Neuritis. She gets him into a specialist the next day since he has to work out of town the next week.  (Friday) Appt #2 was the Ophthalmologist who proceeded to talk in circles, tell my hubby he was just fine and didn't have the optic neuritis but when questioned told me that the next step would be an MRI but he didnt think it would really go anywhere.......total arse of a man in my opinion.
(Monday) My hubby travels for work and left for Iowa but was still having a hard time with his eye.  In the mean time, I am working to get the MRI approved by the insurance while trying to work myself. 
(Wednesday) Not only am I still fighting insurance but now the eye has paired up with a numbness in his upper lip and hes worrying me.  Enough was enough so I called his GP desperate for someone to tell me what he needed.  They didnt make it any easier on my blood pressure when the answer I got was that he needed the ER asap and he was still in freaking IOWA! His foreman got him in the work truck and I got in my truck and met them half way since he wanted to come home and be with me for everything.  In the truck on the way back he called insurance to find out about the MRI approval and they tell him it is still pending because the doc that ordered it (my favorite one) didnt give them enough information.....AWESOME.  We went straight to the emergency room anyway because we werent taking any chances. Its amazing how fast they move when you say you are there because of blurry vision, eye pressure and numbness in the lip on the same side! Blood tests, EKG and a MRI later lead to some serious exhaustion.  At about 1 am the doc came in to say everything was clear and a non emergency but there was something that showed on the MRI so the next step was to meet with a Neurologist.  
(Friday) We meet the neurologist at 3pm which is pretty impressive for a Friday afternoon because I dont know if I would work late appointments on Fridays but I was really thankful that he was there.  He turned out to be great and my hubby and I both really like him.  Doc did all of his tests and said that he did have Optic Neuritis (at this point the arse of a doc from the week before was on my "list") and showed us what he was looking at on the MRI.  We knew that he had "white matter" but that was as far as we had gotten. He was great in showing us the spots that he was focusing on and then when my hubby asked what it was he explained that he had to confirm but he is 80% sure it is MS.  My heart sank and I saw hubby's eyes glaze over.  Doc told us he would need a spinal tap to confirm everything and then results would take about 2-3 days. 
(Tuesday) Spinal tap day went quite a bit faster than I thought even though we were spending yet another day at St Elizabeths Hospital and everyone we met was just great. 
Spinal Tap went great but let me tell you how interesting it was trying to keep him still! He made it through the first movie and then decided he was going to clean the bathtub.....yep! I won that fight but my god he makes me crazy! (in a good way :)
(Friday) We still hadnt heard so I called the office and spoke with the nurse.  She told me that the Doc wasnt there but another one was and had read the results but since she was the nurse she couldnt read them.  I asked straight forward that if the other doc was there and had read them, then everything is back and ready?  The nurse answered that yes it was and that the other doc concurred with the Doc we saw Friday. 

So, this is the preview and the basis of everything else i will talk about.  The only other part is the name of my blog.  I have decided that MS is female.  Not in literal terms I promise but in emotion.  In the way its fighting.  In the way its effecting my hubby without him realizing whats happening until its too much. To be honest, its nice to just be able to say MS must be female so I can say "what a B---H!"

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