Thursday, August 29, 2013

Meds process

Update on where we are at......shared solutions called and got Hubby's info so they can start the process. PROCESS is the key word!
The meds manufacturer will contact him to set up the delivery of his injections. Nurse said this can take anywhere from 2-3 weeks to receive and when he gets them he has to call her back. She comes to the house then and teaches him to use them. I have a feeling that will be quite the turn of events in our house. Either way it will be good to get him started on his meds. I still have so many questions.......like, once he sets this all up, will we be able to pick them up at the pharmacy then? It sounds like the pre filled syringes need to be kept in the fridge- I am assuming that for travel and when he's out of town that this means we need to get him a cooler of some sort? Either way, we are headed in the right direction. 
His next MRI will be 6 months from the day he starts the injections to see if he has any new spots that appear. This will determine what version of MS he actually has. Right now they are saying that since this was his first "attack" that they are assuming Relapsing/Recurring which is good. Anything else will be continued damage no matter what scale the damage is actually on. 
I got a chance to talk to someone at work that was diagnosed with MS 12 years ago. It was nice to sit down and talk to her, ask questions and not be freaked out by all the crap on the Internet. When I told hubby who it was that I talked to, he was shocked because he had met her before and commented that you would never tell. I think that was pretty great because he said "see! That's what I want! No one to ever be able to even tell that I have MS!" She has a walk team that her daughter started and invited us to walk with them. Someone else does the yearly bike ride and asked us to ride with them. Not thinking that this girl on a bike is that great of a decision but we will see! Hubby told me he doesn't know if he's ready to meet others that have MS and I am okay with it. He needs time and if  he decides he wants to or is ready then I will be too. 

So many people have said they are praying for us. If you are reading this it means I more than likely sent you the link and your support means the world. Thank you to everyone that is keeping track of us and know that we love each and every one of you no matter how far away you are! 

1 comment:

  1. Thank you so much for doing a blog. It is great to read about my brothers "process". Its a great outlet for you! I can totally hear him referring to him self as the Tin Man. Keep moving and keep up the positive attitude! love D

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