Learning his limits

Last night was the first time we were able to have a full conversation about hubby having MS. I was amazed at how good it felt to just sit and openly talk about it! It is finally feeling like there isn't a ghost in the room. 

Part of our discussion consisted of him learning his limits. I am married to a hard working, never slow down, always fixing, putzing and tweaking kind of guy. Because of this he is having to learn that by the afternoon he is exhausted. Exhaustion is causing 15-20 minute naps when he gets home from work and is just enough to keep him going. When he doesn't allow his eyes to shut and rejuvenate his body for a bit he is quite the force to be reckoned with so I am welcoming the naps! 

Another limitation he is having to come to terms with is his love for hot showers. Since the weather has been cooler, his eye has not been as bad so he decided to take a hot shower. His eye ended up completely blurry and took a bit to recover. Hubby admitted last night that hot showers are a thing of the past because that was not fun at all. 

I guess we will plug along and continue the learning process! 

Yesterday we had a packet come in the mail from Shared Solutions. It was all sorts of information telling us about Copaxone and a newsletter with advice from others. It was a minor victory when he picked it up and read it himself. I am usually the one that reads all of the paperwork so this was a big deal! 

I really love this company. They are very proactive and are involved with his treatment plan. Hubby said he really likes how involved they are and take such good care of him. Granted, we are still waiting for the injections to finally arrive, but I have no hesitations about giving Shared Solutions the control. (Yes, giving up control is a big deal for me) 

There is no longer an MS ghost in the house. As we wait for medication and progress, I am thankful that with the small pieces of mail and phone calls from Shared Solutions, it still feels like we are getting somewhere.