There are some memory concerns right now that seem to be progressing.....more short term than long term but memory none the less. They said its possible his immune system is still misbehaving but we won't know until after the scan. The best we can do is compensate and keep up with the injections. I am crossing my fingers that it's not another active site but we will see what happens.
So far he has had about 40 injections. No major side affects so that's great news! I asked today what the expectation is for how long it takes before the injections take full effect. His doc told me that all tests are showing the Copaxone against Rebif which is another injection option so it's not 100% conclusive. If there is one thing that makes me crazy, it's being told that it's not 100%. I feel like nothing about this frustrating process is! It is human nature to want cause and effect.....action and reaction.....not to be told "well, we will see" .....kills me. Fix it! Help me help him! Don't tell me we will see....I can't stand that part.
Anyway, enough of my ranting :)
On a better note, I am happy to report that yesterday was a great day for him. Hubby only had to work an 8 hour day and felt great! He actually had energy yesterday and was fully responsive at the end of the day! It was great to see him like that :) He hasn't had energy or felt that good for about 3 months now. Great, great, great day in our house.
Called Shared Solutions today to check and see what we can do about the reactions he is getting in his legs. Out of the 7 sites it's really only the top of his legs that he has a problem. Almost immediately he gets red and a huge tennis ball size bump shows up. It's really tender but he pushes through it. They gave me a few ideas on how to help it not react so bad and said it is because he is so muscular in the leg. Well, I guess this is one downside to being a runner. We will try what they say and see if it helps.
Forgot to ask about recommendations regarding flu shots when we were there so I have a call in to the nurse. I think with how bad he's fighting right now, the flu would be 20x worse for him than it is for any of us. I am fairly confident that he has never had one before so it may be interesting to convince him.....we will see what the nurse says.
Lastly, there are walks every year for MS as there are for just about anything else. I think he wants to do it in the spring so I asked this morning if he wants to do a team. I would be willing to be the Captain and set it up and he said he would like that. I will work to set this up and hopefully everyone that he knows and loves can come do the walk for Team Tinman :) I will keep everyone posted! Let me know if you are interested and I will keep you in the loop.
Have a great day!
